Sharon Terry:
Science didn't understand my kids' rare disease until I decided to study it

TEDMED 2016 · 15:02 · Filmed Nov 2016
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Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together.

Citizen biomedical researcher
Sharon Terry is developing ways for ordinary people to transform biomedical research and healthcare. Full bio
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