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科學界不了解我孩子的罕見疾病,直到我決定開始研究它。
1,400,979 views |
莎朗.泰瑞 |
TEDMED 2016
• November 2016
Read transcript
莎朗.泰瑞是一位前大學牧師兼家庭主婦,當她的兩個孩子被診斷出彈性纖維性假黃瘤(PXE)這個罕見疾病時,她開始了醫學的研究。 泰瑞在這場非常吸引人的演講中,解釋了她和她的丈夫是如何成為素人科學家,並與我們分享為了找出 PXE 背後的基因,在實驗室夜以繼日不停工作的故事,並呼籲科學界的研究人員應該要分享生物樣本並共同合作。
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