Co se stane, když máte chorobu, kterou lékaři neumějí diagnostikovat
2,425,284 views |
Jen Brea |
TEDSummit
• June 2016
Před pěti lety onemocněla Jen Brea, TED Fellow, progresivní myalgickou encephalomyelitifou, která je obecně známá jako chronický únavový syndrom. Jedná se o krutou nemoc, která vážně postihuje schopnost normálně fungovat a ve špatných dnech pro vás může i šustění prostěradla být nesnesitelné. Ve svém dojemném vystoupení popisuje Jen překážky, se kterými se setkala při hledání léčby – zejména proto, že příčinám ani důsledkům této nemoci stále moc nerozumíme. Popisuje také svou misi zdokumentovat životy pacientů, kterým medicína zatím nedokáže moc pomoci.
Před pěti lety onemocněla Jen Brea, TED Fellow, progresivní myalgickou encephalomyelitifou, která je obecně známá jako chronický únavový syndrom. Jedná se o krutou nemoc, která vážně postihuje schopnost normálně fungovat a ve špatných dnech pro vás může i šustění prostěradla být nesnesitelné. Ve svém dojemném vystoupení popisuje Jen překážky, se kterými se setkala při hledání léčby – zejména proto, že příčinám ani důsledkům této nemoci stále moc nerozumíme. Popisuje také svou misi zdokumentovat životy pacientů, kterým medicína zatím nedokáže moc pomoci.
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Watch Jen's film, Unrest.
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About the speaker
Jennifer Brea was a PhD student at Harvard when, one night, she found she couldn't write her own name.
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This talk was presented at an official TED conference. TED's editors chose to feature it for you.
Watch Jen's film, Unrest.
Learn more about ME, find support, and join the movement for equality.