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好或壞不是整個故事
3,006,106 views |
荷樂 · 雷尼爾 |
TED@BCG Milan
• October 2017
Read transcript
荷樂 · 雷尼爾的女兒菲右娜患有導致發育遲緩的遺傳病症「沃夫 - 賀許宏氏症候群」。與一般人對於類似孩子的刻板印象不同,菲右娜既不悲慘,也不是慢飛天使。雷尼爾談及扶養這個罕病女孩的歷程:美好、複雜、快樂又艱辛。她質疑我們文化對於什麼是「好」、什麼是「壞」的假設;挑戰我們:不要在只專注在解決我們認為不正常的事,而是要把握生活。
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