John Novack

Communications Director, Inspire
Peabody, MA, United States

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John Novack
Posted over 2 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
Dave, Thanks. And I'd like to add that those interested in online patient communities should go to your blog at http://epatientdave.com/communities/ to browse--and add to--your growing database of patient communities. You explain it better than I can, but we see all the time that patients draw from support groups not just clinical information and practical advice that they can use in managing their diseases, but they draw emotional support and encouragement too, which is like fuel for empowerment.
Noface
John Novack
Posted over 2 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
Hi Dave, Great topic. We see all the time in our online support communities--particularly in rare disease communities--the references to patients informing their docs of useful information that resulted in better outcomes for the patients. Joyce Graff of the Boston, MA-based VHL Family Alliance, an advocacy group for a rare genetic disease, definitely is one person I'd cite. (Her org has online a printout called, "8 Ways to Help Your Doctor Save Your Life http://www.vhl.org/press/presskit/index.php.)