Whitney Zatzkin

Alexandria, VA, United States

About Whitney

I'm passionate about

healthcare and education; patient advocacy; policy

Comments & conversations

121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
I think following the person ahead of you without thinking first is awful. I agree with you on the discussion front. When facing bladder cancer as a family, we turned to a very small message board community of patients and practitioners all swapping support and interpretation of results/outcomes among one another. At times, I needed the other daughter-caregivers to educate me. At times, I needed the patients to educate me. At times, I needed the practitioners to educate me on making a decision or understanding a finding. The forum has now blossomed and formalized to be more helpful and more robust but it was an eye-opening moment for me to see that people WOULD come together when they needed it most.
121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
Like the "unspoken" best practice we all adhere to within #hcsm - if you are an office that won't email with patients (and hopefully you also tweet/text/etc) for appointments, refills and labs - then we are moving along to the next office that will. We, as patients, need to do the same. If you aren't getting what you need from your practitioner - FIND ANOTHER ONE. Create the demand for better healthcare. The pack will follow.
121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
I think the European Union is doing quite a bit, actually, if you look at the Digital Agenda. I attended the Digital Agenda Assembly this year, its 1st anniversary, and met with several folks working on ICT issues. Impressive agenda for the next ten years and it includes some REALLY phenomenal advancements regarding tech in Healthcare. "Doctors 2.0" was linked to it in many ways and I believe much transformation will unfold.
121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
If you have a bunch of kids on a playground and you don't TELL them to do whatever they want, they will stick to very specific activities or ones they saw before. If you have a bunch of patients and you don't TELL them to ask questions, tweet each other, talk about their concerns, etc. - making a "safe zone" for patients - they will follow whatever the person ahead of them did. (see also: reports of people following the white lines on a road, rather than the path of the road)
121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
I also know part of training is what to educate a patient on and what to reserve from the patient to retain their optimism since it is a driver for improved health outcomes. For example - my bonusmom had bladder cancer and it had spread quite dramatically. We were TOLD it was spread to 3 small sites, "not a problem to treat" was also added. Driving with a sealed envelope of her med records and a disc of images to her next hospital, I ripped it open and found out the cancer was in FAR more than 3 "small" spots - closer to 9 - and they were not small at all, "untreatable" was marked in a note. UNTREATABLE. Later, when we heard she had 72 hours to live and it was in her brain, I was the only family member that knew docs had that information (in the brain) a week earlier and had withheld it.
121291
Whitney Zatzkin
Posted almost 4 years ago
"WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27)
Things like healthcare practitioners (HCPs) educating/encouraging patients on daily self-tracking is a great first step. Technology from Health 2.0 in the US is changing a patient's ability to engage with their practitioners with their own data. I'm part of scriptyourfuture.org -- a campaign working to empower patients to ask questions about their medications - why do I take this? how do I best take this? what should I watch for? - and not just take something without understanding it. We need to keep growing the grassroots on patient empowerment!