Sarah Baron Posted over 2 years ago "WHY is the patient the most under-used resource in healthcare?? How did that happen?" (Follow-up to LIVE TED Conversation July 27) I'll keep the details private as my husband would not like them shared, but I took the following approach: I searched PubMed and used his symptoms as keywords for a Google Alert. I did a lot of searching online and took a few wrong turns before I figured it out, so people, be persistent! His condition is not one that has been identified in the literature for long (maybe 5 years) and I actually identified it first through an informal chat forum, which led to a journal article. The symptoms sounded so familiar, I emailed one of the authors of the paper. They responded (!) that it sounded like he had the condition and recommended he follow up locally with his doc. Bingo. He is working on getting healthy and his condition has improved. Along the way we had a lot of frustrating times as docs who can't provide a dx seem not to want to be bothered (or look bad?) and simply treat the symptoms and send him home. I'm not against docs or hospitals, I think they are in a tough position - IMO they should be paid for prevention and keeping pts healthy, not by the # of prodecures they can rack up (and make pts endure). It helps that I do public health communications-type work for a living but I am not a medical expert. Having some knowledge of the resources out there and good search skills does help. Thanks for the recommendation on the Groopman book - I'll look for it!