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About the science of dietary research and scientific soundness.

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• A reply on Talk: John Wilbanks: Letâ��s pool our medical data

  Oct 24 2012: The reasons for the broken US health might or even likely is an effect of the changed food intake over time. Look at lecture by Gary Taubes or Robert Lustig at you tube and I believe you will get new insights why people get less healthy in the western world and in particular in the US.

• A reply on Talk: John Wilbanks: Letâ��s pool our medical data

  Oct 21 2012: Depending on where you are in world may limit the possibility to work with Big data in Medical/Exposome research. For instance as mention earlier the project Lifegene in Europe https://www.lifegene.se/ was stopped due such problems. Here we are even talking about research program that is design for such research not only using existing data.

• A comment on Talk: John Wilbanks: Letâ��s pool our medical data

  Oct 20 2012: Organizations that handle these types of data need special regulations so that very sensitive data just not floats out to whoever pays much money.
  
  Would we really want next Facebook to handle and sell data with your health records (those who only you and your doctor should have access to)?
  Do really want surplus information that exist in many peoples medical record, about your problems or your family’s problem to be owned by companies?
  
  It is not an accident that we have this protection for this type of data as the Speaker says. It is actually done with intent to protect peoples integrity.
  
  So rather than just give access to your medical. I would like to see large medical research projects to investigate the “Exposome” with a limited and locked access (strict regulation) to your identity data but the give “open” access to all research data. However, this is currently not possible in the EU (Europe) for example, the project LifeGene in Sweden seems to been stopped for legal reasons, https://www.lifegene.se/
  
  I Sweden we have many disease registries, but only one authority the statistics bureau has the right to cross-reference other personal data to disease registries databases. These registries are under strict control. Note the according to what I heard the about European patient record directive (mandatory law in all EU-member states) is that it would be a breach of the directive if one person asks for the records and gives to a third person or company.
  
  I am for this type of research (but how it’s done must be with care) in fact I have made research on Multiple sclerosis (MS) and the connection to geochemical factors. I also wrote a European research proposal last year on how to investigate the European Exposome to find new hypothesize for disease or find hazardous environmental factors that needs to better regulated for the sake of health for a whole population.

• A comment on Conversation: LIVE TED Conversation: Join TED Speaker Eli Pariser

  May 14 2011: I have seen an example of filter-bubble in Sweden and that few know of those. A blogger who belives google shows search the same for all, which is not true all google search and draws conclusion based on these filtered results. For bad and worse..
  
  In essence since all these databases contain personal information and there should exist a way to search to those data yet in a filtered (eg. google, since the page rank is already that) but in understandable, transparent, consistent and repetitive filtered way. Whom ever the user is, or browser, or location ...the user uses.
  
  Facebook should make it possible to reset the filter for news or make some user adaptable parameters and also make the users aware of how it actually works.