Lucien Engelen (1962) Is founder and curator of TEDxMaastricht (2011, 2012) TEDxRadboudU (2012, 2013) and TEDxNijmegen (2013). Has worked since 2007 at the Radboud University Nijmegen Medical Centre as Head of the regional emergency healthcare network. He also advises the Board in terms of changes in healthcare enhancing the participation of the patients and their informal care in their own disease, working towards raising the level of participation in Health(care), research and education. He is initiator and leader of the Radboud REshape & Innovation Center, that follows trends, creates healthcare innovations fast paced into practice, or concludes them as (for the moment) not implementable.
His motto : stop talking, start doing with Patients Included. Patients want to be part of their own disease again.": He often lays out in his presentations. Working on the innovations and changes needed in healthcare to cope with this developments, is part of his daily practice under the REshape-program of Radboud University Nijmegen Medical Center, including research he initiated and leads on the level of e-health (empowered health in his definition) More on that in video : http://vimeo.com/44823018
He initiated the movement Compassion for Care, together with students of the IFSMA (International Federation of Medical Students Association) i.e. to support medical students to change educational system to embrace participatory healthcare.
At home they had several companies, from automotive, funeral services to Emergency Medical Services, he let his passion for improving health lead his career. Looking to health from both a patient and a business perspective combines his expertise together with the possibilities on i.e. the internet. Some background : Generation Y will force healthcare into Participatory Healthcare 24/7 on- & offline like the internet : anytime, anywhere full of choices & options. The upcoming changes in the patient/doctor relationship, partially invoked by the internet, will migrate healthcare into a joint-venture of patient/professional. This triggers me almost on a 24/7 basis. Health2.0 reaches far beyond ICT and is in my opinion THE most challenging aspect of healthcare reform in the next 5-10 years. http://www.vimeo.com/7231823 He was initiator of the first European Medicine 2.0 conference on november 28-29, 2010
He is the second Dutchman who's TEDx-talk was featured on TED.com
And gave his second one at TEDxMaastricht 2012
He was named one of the initial 150 world thought leaders to blog on LinkedIn Today http://www.linkedin.com/today/post/articles/19886490
He is author of :
1. A little Booklet about Health 2.0 (2010)
2. the update 2.1 : (2011)
3. At TEDxMaastricht he presented his third book Patients as Partners : (2012)
He initiated AED4.us (http://www.aed4.us) To improve healthcare and understand the options of crowd sourcing we've launched i.e. www.aed4.us This website allows us to collect geoposition data of AED's by the use of public knowledge. This data is available on iPhone, iPad and Android apps and hostes the Worlds biggest database of AED-locations. Initiated the Community AYA4. ( http://lucienengelen.posterous.com/young-cancer-patients-develop-online-communit ) Young Cancer Patients develop online-community, University Medical Centre facilitates. Radboud University Nijmegen Medical Centre (RUNMC) helps young people with cancer develop their own communities. RUNMC starts with the development of AYA4 (All information You've Asked For): a unique online community for and by young people with cancer. The University hospital facilitates the technique, support and innovation, but it is the patients themselves who determine the content of the community and start filling. They create themselves a digital place where young people with cancer and their families can meet, exchange essential information, ask questions and share knowledge and feeling.
Initiated Patients Included Act. One of the things that struck Lucien is that there is a lot of talking going on about patients without them. For that at one point he wrote a blog on it. http://lucienengelen.posterous.com/no-show-patients-on-conferences and caught up by major healthcare conferences all over the world using it now as a "quality certificate"Â.
Was interviewed by the Guardian : http://www.guardian.co.uk/technology/2012/mar/04/bright-idea-engelen-healthcare-network and the BBC : http://m.bbc.co.uk/news/health-17373614
Is founder of www.MedCrowdFund.org and www.MedCrowdPitch.org (2013)
A crowdfund eco-system with patients in the lead on research and researchers profiling and pitching for patient-initiated and crowdfunded research, on the level of applied research.
Founded the REshape healthcubator , A 6 month, University Medical Center, program facilitating young short-to-market health start-ups that aim for patients as partners.
Be the change you want to see in the world. said Gha
http://www.ted.com/talks/lang/en/lucien_engelen_crowdsource_your_health.html anjd http://www.youtube.com/watch?v=gKqH7eIQ-m0
How to cope with the above and how to make "The Future of Health" a yearly pond of inspiration for people who need and people who work in healthcare. Challenges a big, the chances as well.
To be amazed by the things we can achieve when working with people like Jimmy Stolze and the rest of the team of "The Future of Health", is addicting, energizing and most of all a lot of fun !
Overlooking my work, the conversations, the research and all of the other great things happened over the last 2,5 years, the talks of Karen Armstrong and Rabby Soetendorp at TEdx Amsterdam where instrumental for my insight : Compassion is the key.
It will be my goal to create, stimulate, enhance and strengthen Participatory Healthcare with educating and stimulating Compassion in our own Academic Hospital (Radboud University Nijmegen Medical Centre) in- and outside of it. Together with a bunch of great medical students and the IFSMA i founded www.compassionforcare.com
There are still a few remaining JigSaw pieces on the table ;-)
I often quote Fransis : "Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible" So, i picked up the idea to setup a TEDx conference : www.tedxmaastricht.com was the result on April 4th, 2011 . Since then, never lost TED-virus ;-)
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