Lucien Engelen

Director Radboud University REshape & Innovation Center, Radboud University Nijmegen Medical Centre
Nijmegen, Netherlands

About Lucien

Bio

Lucien Engelen (1962) Is founder and curator of TEDxMaastricht (2011, 2012) TEDxRadboudU (2012, 2013) and TEDxNijmegen (2013). Has worked since 2007 at the Radboud University Nijmegen Medical Centre as Head of the regional emergency healthcare network. He also advises the Board in terms of changes in healthcare enhancing the participation of the patients and their informal care in their own disease, working towards raising the level of participation in Health(care), research and education. He is initiator and leader of the Radboud REshape & Innovation Center, that follows trends, creates healthcare innovations fast paced into practice, or concludes them as (for the moment) not implementable.
His motto : stop talking, start doing with Patients Included. Patients want to be part of their own disease again.": He often lays out in his presentations. Working on the innovations and changes needed in healthcare to cope with this developments, is part of his daily practice under the REshape-program of Radboud University Nijmegen Medical Center, including research he initiated and leads on the level of e-health (empowered health in his definition) More on that in video : http://vimeo.com/44823018

He initiated the movement Compassion for Care, together with students of the IFSMA (International Federation of Medical Students Association) i.e. to support medical students to change educational system to embrace participatory healthcare.

At home they had several companies, from automotive, funeral services to Emergency Medical Services, he let his passion for improving health lead his career. Looking to health from both a patient and a business perspective combines his expertise together with the possibilities on i.e. the internet. Some background : Generation Y will force healthcare into Participatory Healthcare 24/7 on- & offline like the internet : anytime, anywhere full of choices & options. The upcoming changes in the patient/doctor relationship, partially invoked by the internet, will migrate healthcare into a joint-venture of patient/professional. This triggers me almost on a 24/7 basis. Health2.0 reaches far beyond ICT and is in my opinion THE most challenging aspect of healthcare reform in the next 5-10 years. http://www.vimeo.com/7231823 He was initiator of the first European Medicine 2.0 conference on november 28-29, 2010
He is the second Dutchman who's TEDx-talk was featured on TED.com
And gave his second one at TEDxMaastricht 2012

He was named one of the initial 150 world thought leaders to blog on LinkedIn Today http://www.linkedin.com/today/post/articles/19886490

He is author of :
1. A little Booklet about Health 2.0 (2010)
2. the update 2.1 : (2011)
3. At TEDxMaastricht he presented his third book Patients as Partners : (2012)

He initiated AED4.us (http://www.aed4.us) To improve healthcare and understand the options of crowd sourcing we've launched i.e. www.aed4.us This website allows us to collect geoposition data of AED's by the use of public knowledge. This data is available on iPhone, iPad and Android apps and hostes the Worlds biggest database of AED-locations. Initiated the Community AYA4. ( http://lucienengelen.posterous.com/young-cancer-patients-develop-online-communit ) Young Cancer Patients develop online-community, University Medical Centre facilitates. Radboud University Nijmegen Medical Centre (RUNMC) helps young people with cancer develop their own communities. RUNMC starts with the development of AYA4 (All information You've Asked For): a unique online community for and by young people with cancer. The University hospital facilitates the technique, support and innovation, but it is the patients themselves who determine the content of the community and start filling. They create themselves a digital place where young people with cancer and their families can meet, exchange essential information, ask questions and share knowledge and feeling.

Initiated Patients Included Act. One of the things that struck Lucien is that there is a lot of talking going on about patients without them. For that at one point he wrote a blog on it. http://lucienengelen.posterous.com/no-show-patients-on-conferences and caught up by major healthcare conferences all over the world using it now as a "quality certificate".

Was interviewed by the Guardian : http://www.guardian.co.uk/technology/2012/mar/04/bright-idea-engelen-healthcare-network and the BBC : http://m.bbc.co.uk/news/health-17373614

Is founder of www.MedCrowdFund.org and www.MedCrowdPitch.org (2013)
A crowdfund eco-system with patients in the lead on research and researchers profiling and pitching for patient-initiated and crowdfunded research, on the level of applied research.

Founded the REshape healthcubator , A 6 month, University Medical Center, program facilitating young short-to-market health start-ups that aim for patients as partners.

Languages

Dutch, English, German

TED Conference

TEDActive 2013

Areas of Expertise

Healthcare Business, Health 2.0, Participatory Healthcare, Social Media Ambassador, for Radboud University Nijmegen Medical

An idea worth spreading

http://www.ted.com/talks/lang/en/lucien_engelen_crowdsource_your_health.html and http://www.youtube.com/watch?v=gKqH7eIQ-m0

I'm passionate about

Be the change you want to see in the world. said Ghandi

Talk to me about

How to cope with the above and how to make "The Future of Health" a yearly pond of inspiration for people who need and people who work in healthcare. Challenges a big, the chances as well.

People don't know I'm good at

To be amazed by the things we can achieve when working with people like Jimmy Stolze and the rest of the team of "The Future of Health", is addicting, energizing and most of all a lot of fun !

My TED story

Overlooking my work, the conversations, the research and all of the other great things happened over the last 2,5 years, the talks of Karen Armstrong and Rabby Soetendorp at TEdx Amsterdam where instrumental for my insight : Compassion is the key.
It will be my goal to create, stimulate, enhance and strengthen Participatory Healthcare with educating and stimulating Compassion in our own Academic Hospital (Radboud University Nijmegen Medical Centre) in- and outside of it. Together with a bunch of great medical students and the IFSMA i founded www.compassionforcare.com
There are still a few remaining JigSaw pieces on the table ;-)

I often quote Fransis : "Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible" So, i picked up the idea to setup a TEDx conference : www.tedxmaastricht.com was the result on April 4th, 2011 . Since then, never lost TED-virus ;-)

Favorite talks

Comments & conversations

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Lucien Engelen
Posted over 1 year ago
How might gaming and crowd-sourcing change the future of science?
Time wil come that patients are in the position to actually design the needed research THEY think that's needed. As An academic Medical Center we've set up a project for that that has been written about by the Society of Participatory Medicine : http://e-patients.net/archives/2012/12/the-patient-as-partner-in-medical-research-at-radboud-university.html Crowdsourcing idea's, crowdfunding the money for the research and selecting the researchers themselves. Read more about it on : http://www.linkedin.com/today/post/article/20121204081445-19886490-real-patientdriven-research-crowdfunding-crowdsourcing?trk=mp-edit-rr-posts
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Lucien Engelen
Posted over 1 year ago
Lucien Engelen: Crowdsource your health
Sure Michael, would love to have siri and other apps already on the phone find them. But we first have to locate them. That is done with our apps www.aed4.us they don't show up themselves, problem is as stated that there is no l;aw or other driver for people to submit them, we hope with creating awareness that we be able to ignite this. in the NL already over 20.000 AED's and will soon start a game to boost it even more : http://www.slideshare.net/lucienengelen/reshape-electromons-aed4eu-gfh12eu. PLease hlp us spreading the word.
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Lucien Engelen
Posted about 2 years ago
Lucien Engelen: Crowdsource your health
@Nick thank you. Yes we ARE looking into this with more and more researchers as well. Working our way through taking "bay-steps" but in stead af talking really acting on it. Might keep an eye on http://www.radboudreshapecenter.com coming months for some nice announcements ;-)
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Lucien Engelen
Posted over 2 years ago
Lucien Engelen: Crowdsource your health
Dear Camille, yes i appointed a CLO Chief Listening Officer two years ago in my team at in our Radboud University Medical Centre. She listens and takks to patients, family and informal care BEFORE overy project that we start at our Radboud REshape & Innovatin Centre. Next to the use of scientific literature the results of this approach has proven to be highly increasing adoption of our innovations, since the are moee taylored to what the targetgroup REALY wants. As health care professionals we tend to THINK that we know, but the fact is that we don't. One of the main reasons for that is that there is lack of time in general for it.
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Lucien Engelen
Posted over 2 years ago
Lucien Engelen: Crowdsource your health
Yes technically it isvready for commercialisation, but we decided to keep this service free (sponsors welcome) . We are a University Medical Hospital so funded public. Platform for ither use; could discuss. Email me through my profile of follow me on twitter @lucienengelen
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Lucien Engelen
Posted over 2 years ago
Lucien Engelen: Crowdsource your health
Partially agree Matt. HC demand will grow over the next decade, so that won't be the problem. To see doctors face to face is very important, at the minimum the first consultation. But for some visits a video-communication will be less invasive then taking day of, parking, waitingroom etc. For that we have made http://www.facetalk.nl/en in our innovation center. No hardware just like using Skype, but secure and incorporated in our University Hospitals workflow. Technology is pushing this fast as it gets easy to use, low cost and people are tyred of waiting and traveling.
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Lucien Engelen
Posted over 2 years ago
Lucien Engelen: Crowdsource your health
People ask for more crowdsource projects we are involved in. Would like to mention MyHealthStory http://myhealthstory.me/page/1/home.html that i set' up with Google's Chief Health Strategisch Roni Zeiger (AKA Dr Google ;-) Still in beta but over the year will be launched in 11 languages. More about the project http://myhealthstory.me/page/2/about-myhealthstory-beta.html Also we've set up a community for young adult cancerpatients for wich we crowdsourced the right setting amongst young cancerpatients . More about this on my blog, since Forrester published an Case Study about it http://lucienengelen.posterous.com/forrester-case-study-aya4-community-patients