TED Community » Xyle Soulful

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Creating a better world for people affected by Schizophrenia

An idea worth spreading

1. Awareness that Schizophrenia is not a 24 x 7 Mental Condition.

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How to change the way the world looks at Schizophrenia and people affected by Schizophrenia!!

Comments

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• A comment on Talk: Sherwin Nuland: How electroshock therapy changed me

  Jan 11 2013: I wish there were new insights on this topic of using ECT. I have had a very bad impression of ECT because of movies. But watching this video has made me feel that ECT may not necessarily be a 'torture'. But I still don't know the truth. Would I trust myself in the hands of under educated medical professionals and attendants to give me ECT? Never.
  
  I read several cases where ECT is administered by ward boys and attendants involuntarily to patients.
  
  Is it really as good as it seems in this Video?

• A reply on Conversation: Spread Awareness that Schizophrenia is not a 24 x 7 Mental condition

  Jan 10 2013: Yes, thanks so much for sharing your experience. I believe, that when people go off the meds or are taking improper dosage of medicine, they tend to stay in 24 x 7 schizophrenic mental condition. Hence I put forward this question to all the people who are going through schizophrenia day after day , week after week.... "Are you getting a proper treatment?"
  
  It is one thing to have a relapse and go through the key symptoms for a day or for a week while the drugs are taking their effect on us. But it is quite another to live with these key symptoms everyday as if it was meant to be.
  
  I have had my share of relapses and dosage of ineffective drugs.
  
  This discussion is taking a nice turn. Thank you so much :)

• A reply on Conversation: Spread Awareness that Schizophrenia is not a 24 x 7 Mental condition

  Jan 9 2013: Love your approach an attitude towards this mental condition and your experience with it. I, myself, am exploring the 'Episode' side of Schizophrenia and the nature of the content through Trans-Personal Counseling. I pay attention to my mind and the memories and try to go back to the earliest of my memories that probably found the base or foundation for the complex content that surfaced during the Episodes. It has been an enlightening affair so far with minimum trigger.
• +1

  A reply on Conversation: Spread Awareness that Schizophrenia is not a 24 x 7 Mental condition

  Jan 9 2013: Yes, the experiences during an Episode can be very strong and it is a whole diff journey to reflect over the content and redefine the meanings we attach to those experiences. But this journey, although rooted in key symptoms of Schizophrenia, is separate from the mental condition itself.By drawing the line of distinction between 'Episode' and 'Usual Life,' the affected person and the care giving team can focus in the right areas.
  
  For example, by discovering this line of distinction in my life, I am able to manage my mental condition, the trauma and memories of Episodes, redefining my reality, working towards my goals in life.... without mixing it all up with one thought that I am a Schizophrenic.
  
  Once I started to see it as 5% ... it immediately moved my attention towards 95% and recreate my life. It is an empowering perspective. By making difference in my own life, the people around me are starting to see it as just another form of illness or extraordinary mental condition.
  
  The core intent is to shift the attention from 5% to 95%.

• A comment on Talk: Elyn Saks: A tale of mental illness -- from the inside

  Jan 9 2013: This talk has given me so much food for thought when it comes to how schizophrenia is seen and treated by the medical professionals and society in general. I am posting this talk on my blog for schizophrenia and will be recording my thoughts for broadcast on my online radio. http://soulfullivingwithschizophrenia.blogspot.com