- Ray Jamieson
- Gold Coast
Author and teacher,
How do you manage a chronic illness from 2 viewpoints - the person who is ill, and their immediate career?
Life isn't always a straight line. We get thrown curve balls. How we manage them is the key to whether we make it or not.
People with chronic illnesses suffer from their illness or disability, but also from the guilt of not being able to do more, and from feeling like they are taking away the time of the life of the person who cares for them.
Generally, a chronically ill person (not necessarily terminally ill) is in pain. Sometimes incredible pain, more than anyone should have to bear. As one lady said "Childbirth was agonising, but it lasted only 14 hours and I had a smiling bundle of joy at the end of it. This is worse pain, it never ends and I get no joy from it at any time!"
Often they are financially disabled, because they cannot get out to work, and need to rely on a pension if available, or whatever money they can create.
Medication is expensive. Sometimes, the medication that is proven to work in one country is not available in another - lots of that problem here in Australia! Or it is INCREDIBLY expensive!
Often, they are depressed, and who wouldn't be? Trapped either at home or in care by a condition they didn't choose.
Enough to make anyone depressed, angry, frustrated or just plain grumpy for a whole variety of valid reasons.
Their carers have to manage this, as well as have their own lives. If it's a spouse, they have little chance of an escape, as they can't go home and away from the role - often it is at their home.
My question is, how do you manage? What strategies do you employ to handle the challenges and stresses of being chronically ill, or caring from someone who is chronically ill.
This is personal for me, I have this situation in my home.
I have blogged about it and asked these questions but would love feedback and ideas. http://www.lifechange90.com/chronic-illness/ is the web page, and the blog is http://www.lifechange90.com/challenges-of-chronic-illness/
What is your experience? What do you do?