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If all of the brilliant high functioning folks on the spectrum choose to, they could create a system of support for all autistics.

Our country has a giant generation of middle aged ASD folks. Many are being cared for by elderly parents, relatives. That elderly generation is dying and those that were relying on that senior, are placed into the public care system, which is where they do not belong. With programs in place that provide resources for these adults for every available life service, education and medical. This would include a 'Partnering' program that would match up those who, as a team, can still function in the same capacity as they were before they lost there main source of support. Many of these adults hold jobs, volunteer, but need that one care giver that helps give them the encouragement and stability to thrive. They do not need the government to thrive, they need the rest of fortunate enough to be successful with ASD to help our sisters and brothers not as fortunate, but still very functional in a plethora of ways. Joe X can work, take care of the car and the does yard work. He lives with his 88 year old mom, who always made sure the bills were paid and Joe ate his dinner and brushed his teeth. Now Mom has passed on and Joe X iis lost and cannot understand why the water has been shut off. He calls our resource line and we are able to step by step help Joe to maintain his lifestyle. We give him a partner that can take care of the banking and cooks, but he is in a wheelchair and is ASD like Joe. They meet and are compatible, now Joe is doing well and so is his new Roommate/friend! It is not always so simple, but most things that are worthy of doing are not. The wave of change is due folks! This is a real concern for my family, how about yours or someone you know?

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    Sep 3 2013: You're right about one thing. The task at hand is a bit complicated, but I don't think logistics are the only hurdles to be gotten over for a plan like this. If other high functioning autistics are anything like me then we feel it is prerogative to simply sweep this issue under the rug. What that word is associated with is simply too painful of a subject for those of higher function to go into greater depth about.
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    Sep 1 2013: what happened to the TED,I cant post my own conversations any more,can you ? Do you know why?
    • Sep 1 2013: my first time is the post you see.... i have no idea and it is still letting me.....google it :)
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        Sep 2 2013: It does work for some folks,I have no idea.Have I done anything that violated TED rules? It it not fair.
        • Sep 2 2013: Im so sorry for your frustration sir...I have issues with allot of the internet stuff. I knw this is obvious, but have you written them, do they have a HELP section? wishing you luck!! :))
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          Sep 2 2013: FYI: there has been no a new conversations or TED talks for a few weeks, I don’t know why. But it is not working for anyone, likely we will have hundreds of new conversations on the same day soon. Yours and everyone else that has done one lately should be posted as soon as they fix whatever issue they are having, that are whip them all to clean out the system.
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        Sep 3 2013: Thanks,you guys are so sweet,I hope TED will be functioning normally soon. I appreciate you.
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    Aug 29 2013: I prefer thinking about other topics, but I just came across this TED-Ed Lesson and thought of this conversation; http://ed.ted.com/lessons/there-s-no-dishonor-in-having-a-disability-steven-claunch
    His statement “prove THEM wrong” speaks volumes, without intending to.
    So we all need to ask ourselves if we are one of them, and just on physical handicaps but also mental and spiritually.
    You know how them say when you lose one of your senses the others become stronger. I have found this to me true with skills and abilities also.

    Back to your topic: I thinking having something set-up similar to a dating service, but instead of male/female it has people in need and those who want to help. But also it should use crowd-source founding and crowd-source guardians.

    So Joe X does a recorded-interview with the partnership-service, gives medical information and consent to having a back grown check done. Then he matched up with three possible roommates/helpers, after reviewing their information and interviews he selects Frank who is currently homeless ,and working as a car salesman in the area. Frank then sees Joe X interview and agrees to meet him, with a guardian present. A guardian also videos the home and items within. Guardians will provide multiple layers of protection for both parties.

    partnership-service could work with lots of layers of protection, and flexibilities in services. Jean B may only need rides to shop and get to the doctor or med time reminder calls, so it should be set-up to help her also.
    • Aug 29 2013: May we connect? My email is fairyqueenflutterby@gmail.com~ robin borakove. I think we can help each other!!! :)
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        Sep 2 2013: Hi Robin, firstly I have to say your story of being an Author of children's books and Philanthropist is very impressive, inspiring and I would love to see you give a TED talk.
        Currently my life is in a transition, going from looking inward as to the meaning of life to now trying to find a way to give my life meaning.
        And although I do not have the skills and passion to follow the ideas within this thread, I have a feeling our paths crossed for a reason and I will email you soon. I just got some work and home projects I need to take care right now, and I would like to wait until I have the time and attention to cover it properly.
        Until then I have a few favorite Talks in my profile, I think you may find interesting.
        I can see Janine Shepherd’s story being reworked into a children’s story.
        I have two Jane McGonigal talks and her SuperBetter program and fairy queen flutterby seems to me like the two of you could help each other.
        And I think every Philanthropist needs to see Ernesto Sirolli’s talk.
  • Aug 23 2013: it is not merely a matter of brilliance and high functioning, compassion and a healthy and positive emotional response is also required to help with this situation. while there are many such people in our society, you will not necessarily find any more of them through asking for the brightest doers. i wish you luck, however because the nature of the situation seems to be diffused, it seems at this time that a person to person, individual response is what is required. the best thing that i can think of being done on a larger level is bringing awareness of the situation to as many people as possible. i hope that you do well in this endeavor.
  • Aug 22 2013: Thank you! your info is invaluble to my research!
  • Aug 22 2013: It has come to my attention that if a topic is about disabeled or handicap, maybe you will get max a dozen or so comments. If the subjexct is about anything else, add a celebraty and there is a feeding frenzy!! REALLY USA?? whats wrong with this , HUH???
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      Aug 22 2013: Here is an incomplete list of talks related to disability. http://www.ted.com/topics/disability You will see hundreds of comments on some of them. I say incomplete, because I notice Temple Grandin's popular talk is not on this listing, the talks having to do with mental illnesses are not included, and, for example, the recent neuroscience talk from TED 2013 in which the researcher demonstrated the use of deep brain stimulation to counteract the motor symptoms of Parkinson's and Alzheimers are not on this short list. But you can find them if you search TED talks.

      Here is a playlist specific to autism: http://blog.ted.com/2013/06/18/playlist-all-across-the-autism-spectrum/

      Here are the talks related to mental health and their hundreds of comments: http://www.ted.com/topics/mental+health

      You might also be interested in a recent active conversation called Family Corps about steering recent graduates into service work to assist those with disabilities. http://www.ted.com/conversations/16091/family_corp.html

      I cannot remember the mention of celebrities in any TED conversation, unless you are counting someone like Elon Musk, the inventor of the Tesla.

      If you look at conversations that are indicated as Ending Soon, you will see many and varied topics draw fewer than 20 comments.
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        Aug 22 2013: FYI: Flutterby is referring to my comment on “conversation” have few replies, TED Talks is a different matter. I could add “disability” and “handicap” are not the only none attention grabbing topics, I just don’t have a list and that was not pertinent to my point.

        Generally the working handicap gets shorted in many ways.
        *Equal pay for equal work, for all minorities (except the handicap)
        *Employers get tax credits for hiring the handicapped, but handicapped employees don’t.
        *Employees can get tax credits for being married, having kids, education, energy, etc. etc. but handicap have to be on full disability (AKA: charity) to get a break.

        My disability is mostly hidden, and I have seen how co-workers change their interactions with me if they find out. (And its not a positive change) I’m not saying that they are bad people; I may have done it myself before my disability. TEDsters are a cut above average, but still we are not perfect.
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    Aug 22 2013: Flutterby's Page Fluttervision don’t be sadden by the lack of replies, the most any conversation on handicap or disability has gotten was 13 replies.
    The fully functioning folks just don’t care and prefer the less than fully functioning folks stay out of their sight. Sure they want to hear about us doing art, but nothing productive. And they will pat themselves or anther fully functioning folk on the back for help in some way, not realizing we want self-reliance and not charity.
    • Aug 22 2013: I love your honesty, painful as it is! I would like your permission to post your responce everywhere! It is important and very poignant! Thank you
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        Sep 9 2013: Yes you have my permission, but change “we want self-reliance” to “many of us want self-reliance” for not all have the health/means or desire for self-reliance. To think of it even among highly functioning folks, too many don’t have a desire for self-reliance.


        I have three rules to being charitable. 1. Don’t need charity (or as little as possible) 2. Make sure you never need charity. (Save for retirement) 3. Help those who desire to following the three rules, but need help to do so.

        For me personally by me not receiving charity, I figure I help others by not taking charity help they could be getting. And step 2 is a slow work in progress, and tax credit would help with the goal, with making feel like I’m receiving charity, just a helping hand.
  • Aug 19 2013: Yes Sir I did mean like in the good ol' days. Im sorry to hear your folks have passed. It seems to me they did by you! Thank you for your comments!
  • Aug 18 2013: What? Parents are different or they wear out in their 80's like mine did?
    • Aug 18 2013: could you please reiterate?
      • Aug 19 2013: What you said could mean ttwo things to me Probably you meant that parents are not like in the good old days which is probably true.

        I am 63 My parents are now very different They are dead as opposed to how they once were - alive.
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    Aug 16 2013: The thought of it turns most people’s stomach and makes people’s blood boil, but there are people that abuse the elderly and sadly they likely would find their way into autistic care system.

    I can think of two safe ways to help all those with disabilities.

    A. Do the step-by-step in helping Joe X, but instead of a roommate; have online crowdsource system, that can help them pay bill, remind to take drugs on time, train in life and/or work skills, find a job if possible or just lend a friendly ear. (So Jake can send in Joe’s water bill with money from Joes account, and Bill, Lisa, Jean, and many others can check that it was done correctly)

    B. Give handicap and disabled workers a tax create as a thank you for being self-reliant. So when Joe X earns money from has IT job it all goes into his account, and the government does not take a large part of it. Employers get tax creates for hiring the handicap, so why not the employee who has high medical bills, have to hire people to do with home repair because they are unable, and have limited earning possibilities.

    Plus:
    People with a handicap (like Autism) do often want to be self-reliant!
    Also they also can be brilliant! For example Stephen Hawking.
    • Aug 16 2013: I am not speaking of the elderly being abused by their offspring or care givers, that is another matter. One that is vital to be addressed and actions need to be taken. I am however aware of government funded "Assisted Decision making and support" programs that are being cancelled because of lack in funding. My idea would be run and funded by private sector, no government participation. If the resource lines are successful, the hope is government emulating program nationwide. I love the idea of the tax credit for the phys/mentally challenged. GREAT IDEA!
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    Aug 16 2013: I think your idea is not bad. Like other problems, one needs people who are really interested in the topic and want to solve that specific problem.

    I think there are probably some programs around ASD in your country or region. I would suggest you speak with them about your idea.

    Personally I know some people with ASD in my country, and they often have support by family or organisations. Of course it can be improved, so if your model would be apt for translation to other countries, you can build a broader organisation that looks beyond the borders.
  • Aug 16 2013: Why not?
    • Aug 16 2013: Absolutely why not!!
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      • Aug 17 2013: I am in favor of doing anything that makes sense that makes life better. I have always wondered why we don't appoint designated adults for many of us maybe all of us. It's like having someone help in SSD or SSI if a person can't handle their money. Also we have Ad Litems and
        Special Commosxsopners at the courthouse.
        I am an attorney in Fort Worth, Texas, USA. Remember how helpful Mom and Da were when we talked with them