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Xyle Soulful

Team member, Hope Xchange

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Spread Awareness that Schizophrenia is not a 24 x 7 Mental condition

Most people have no idea what schizophrenia really is. They think that Schizophrenia is a 24 x 7 mental condition and people diagnosed with it are under delusion, hallucination or hearing voices all the time.

Typically, as per my experience... when the key symptoms show up it is known as 'Episode'. Episode can be controlled within a period of 1 day or 1 week depending on how long it takes for the affected person to have the medication working effectively.

I would say, most people with this mental condition spend 5% in Episodes and 95% dealing with the effects of medicines, memories and trauma resulting from the Episode.

If this clarity is brought forward on media it can change the way how people see the affected.

Mostly, people affected with schizophrenia are dealing or trying to cope up with daily life 95% of their lifetime.

The acute challenge is Episode .... but the challenge posed by the reality of social awareness imposes the impression that the Episode or Key symptoms of Schizophrenia is a lifelong experience.

Hence, the affected people are treated with stigma in the society.

There could be a change in the approach of people affected with Schizophrenia, Caregivers, Medical Professionals and society in general if this distinction is expressed clearly when talking about Schizophrenia.

Would spreading a simple message that Schizophrenia is not a 24 x 7 mental condition bring about a change in thinking??

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Closing Statement from Xyle Soulful

Thank you everyone for your inputs.

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    Gail . 50+

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    Jan 10 2013: When my brother and sister (both have schizophrenia) are not on their meds, for them it is a 24/7 condition. (Well, I can't say that it impacts them in their sleep - I simply can't know that. But I can know that it impacts them (and us) every waking unmedicated moment).

    The social stigma would probably go away if those with schizophrenia were not so likely to go off their meds.
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      Jan 10 2013: Yes, thanks so much for sharing your experience. I believe, that when people go off the meds or are taking improper dosage of medicine, they tend to stay in 24 x 7 schizophrenic mental condition. Hence I put forward this question to all the people who are going through schizophrenia day after day , week after week.... "Are you getting a proper treatment?"

      It is one thing to have a relapse and go through the key symptoms for a day or for a week while the drugs are taking their effect on us. But it is quite another to live with these key symptoms everyday as if it was meant to be.

      I have had my share of relapses and dosage of ineffective drugs.

      This discussion is taking a nice turn. Thank you so much :)
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    Jan 9 2013: I find schizophrenia fascinating..there is a repeating type of haullicinations that are ominous and revolve around evil and huge themes of supernatural beings with agendas...the common thread of vision to me indicates where the traulma is located in the subconscious and the vision a metaphour of perhaps what resides under the film of sanity in us all. I had the experience of temporary schizophrenia 3 times,once when i was starving,once when i had been violently assaulted, and the other an extension of too many 1970s drugs...Each experience was full of known authentic myth,and stuff i was not aware i was thinking about ever...Luckily for me my episodes are caused by extreme threat or stress....i am not locked in for ever intermitently ...i do not require medication...but i did meet with others who are more encompassed by this pattern . What i wish is that there was a book cataloguing all the variations of hallucination...i believe they are not unfounded,but based on real information...related in ways that we currently see as useless,or even worse threatening....My time spent between reality and somewhere in my subconscious are very special to me an d have sparked interest in ways i could never have gone without this cause...For me it was a hard experience but valuable ...i have never heard of how this breakdown is an opportunity to see into man as he slips out of cadence with others as informative,instead only a tale of fear and woe about this threat of being different
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      Jan 9 2013: Love your approach an attitude towards this mental condition and your experience with it. I, myself, am exploring the 'Episode' side of Schizophrenia and the nature of the content through Trans-Personal Counseling. I pay attention to my mind and the memories and try to go back to the earliest of my memories that probably found the base or foundation for the complex content that surfaced during the Episodes. It has been an enlightening affair so far with minimum trigger.
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    Jan 9 2013: I'm unsure if spreading that message would lead to any less stigma from society. People, whether it is warranted or not, fear the unknown. Even if episodes only occur intermittently, the one time someone experiences that person during such a time would effect them quite adversely.
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      Jan 9 2013: Yes, the experiences during an Episode can be very strong and it is a whole diff journey to reflect over the content and redefine the meanings we attach to those experiences. But this journey, although rooted in key symptoms of Schizophrenia, is separate from the mental condition itself.By drawing the line of distinction between 'Episode' and 'Usual Life,' the affected person and the care giving team can focus in the right areas.

      For example, by discovering this line of distinction in my life, I am able to manage my mental condition, the trauma and memories of Episodes, redefining my reality, working towards my goals in life.... without mixing it all up with one thought that I am a Schizophrenic.

      Once I started to see it as 5% ... it immediately moved my attention towards 95% and recreate my life. It is an empowering perspective. By making difference in my own life, the people around me are starting to see it as just another form of illness or extraordinary mental condition.

      The core intent is to shift the attention from 5% to 95%.
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        Jan 9 2013: That is an amazing perspective. I applaud you for recognizing it. Reading your post changed my feeling on the discussion as well. As an otherwise unaware person on this I can feel myself switching gears to see people with not only mental illness, but any illness as people independent of their conditions. Thanks :)